Ask your MLAs to help babies in Northern Ireland.

A man and a woman smiling and laughing with a little boy who is sitting in a wheelchair. It is bright red. We must act now. We urgently need every baby in Northern Ireland to be screened for spinal muscular atrophy (SMA) shortly after birth.

We can’t sit by. Without newborn screening, babies are being diagnosed too late to receive effective treatment to prevent permanent muscle damage. Many will rely on feeding tubes and equipment to help them breathe, and may never take their first steps freely.

And we need your MLAs help to make this happen. MLAs listen to their constituents. If they support newborn screening, the Minister is more likely to make it happen.

Please email your MLAs. Babies with SMA don’t have time to wait.

Enter your details to start building your email.

First name

Last name

Email address

Address 1, start typing and select your address

Address 2

City or town

Postcode

Do you want to stay updated about Muscular Dystrophy UK's work? This would include emailing you our monthly e-newsletter and other opportunities to support our work, including campaigning.

Contact me by email

Contact me by post

Are you sure? If you ask us not to email you, we won't be able to keep you updated about our work.

We will only contact you in the ways that you choose. You can change your preferences at any time. For details of how we use and protect your information, and your rights, please see our Privacy Policy here or call 0300 012 0172.