Find out if newborn screening is happening where you live
Babies born today with spinal muscular atrophy (SMA) don’t have time to wait.
Without newborn screening, babies are being diagnosed too late to receive effective treatment to prevent permanent muscle damage. Many will never take their first steps freely and will rely on feeding tubes and equipment to help them breathe.
But not every baby across the UK is currently being screened. It is a postcode lottery.