Our Muscles Matter

Find out if newborn screening is happening where you live

A man and a woman smiling and laughing with a little boy who is sitting in a wheelchair. It is bright red.Babies born today with spinal muscular atrophy (SMA) don’t have time to wait. 

Without newborn screening, babies are being diagnosed too late to receive effective treatment to prevent permanent muscle damage. Many will never take their first steps freely and will rely on feeding tubes and equipment to help them breathe.

But not every baby across the UK is currently being screened. It is a postcode lottery. 

Spinal Muscular Atrophy UK logo. It has the tagline "Supporting. Informing. Advocating."

Mae'r dudalen hon ar gael yn Gymraeg hefyd. Ewch i'r fersiwn Gymraeg

Enter your details to find out what’s happening where you live. 

The system requires these details to take you to the next page.

Are you sure? If you ask us not to email you, we won't be able to keep you updated about our work.

We will only contact you in the ways that you choose. You can change your preferences at any time. For details of how we use and protect your information, and your rights, please see our Privacy Policy here or call 0300 012 0172.