Invite your MLAs to meet us

A man and a woman smiling and laughing with a little boy who is sitting in a wheelchair. It is bright red. We must act now. We urgently need every baby in Northern Ireland to be screened for spinal muscular atrophy (SMA) shortly after birth.

We can’t sit by. Without newborn screening, babies are being diagnosed too late to receive effective treatment to prevent permanent muscle damage. Many will rely on feeding tubes and equipment to help them breathe, and may never take their first steps freely.

And we need your MLAs help to make this happen. That’s why on 2 November, Muscular Dystrophy UK and Spinal Muscular Atrophy UK will be at Stormont. We’re taking evidence, stories and families affected by SMA to talk about what your MLAs can do to help.

Please email your MLAs. Babies with SMA don’t have time to wait.

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